Holding Hope: A Mother’s Journey Through Prematurity
Every year on 17 November, we pause to honour the tiniest fighters among us — babies born before 37 weeks — and the resilient families and healthcare teams who journey beside them. This World Prematurity Day, I sat down with Tasmin Bota, the founder of Preemie Connect, a community-born initiative that supports families navigating life with premature babies.
From the moment Tasmin began speaking, her warmth filled the room. Behind her gentle tone was a story of courage, faith, and transformation — one that began eight years ago in the midst of crisis.
“He was born at 28 weeks. I didn’t even know babies that tiny could survive.”
Tasmin’s son arrived at just 28 weeks due to a placental abruption, delivered via emergency C-section. “He only had one pillow at birth,” she recalled softly. “When I woke up from surgery, my first question was, ‘Is my baby alive?’”
When she was finally wheeled into the NICU nine hours later, she faced a sight that no parent is ever truly prepared for — a baby so small that his nappy seemed too big, surrounded by wires and machines keeping him alive. “There were more wires than baby,” she said. “I was shell-shocked. I didn’t even want to bond with him at first. I was preparing myself for the worst.”
But hope, as it often does in the NICU, found a way. After a week, her son came off the ventilator. “That was the turning point,” she smiled. “I told myself, if he’s going to fight, then I have to fight alongside him.”
For 54 days, the NICU became home — a blur of alarms, whispered prayers, and fragile milestones. Yet amid the fear, Tasmin found connection with other mothers. “We’d share numbers, stories, and tears,” she said. “That’s how Preemie Connect really began — a small group of moms holding each other through the hardest days.”
From Surviving to Supporting: The Birth of Preemie Connect
After her discharge, Tasmin realized the hardest part wasn’t over. “Once we were home, I still had a million questions — and no one to ask,” she explained. “Everyone around me meant well, but no one truly understood the NICU experience.”
That gap became her calling. “I heard God say, ‘Why are you looking for what you could create?’” she said. And with that, Preemie Connect was born — a platform that offers emotional support, evidence-based guidance, and a sense of belonging to families across South Africa.
Tasmin describes the organization as “a bridge between healthcare professionals and parents,” offering compassion, information, and hope. “We walk with parents from the NICU to home life, and sometimes all the way through childhood. Once a preemie parent, always a preemie parent,” she said.

Finding Strength in the Small Moments
One of the biggest hurdles for parents of premature babies is bonding. Between tubes, alarms, and fear, even touching your baby can feel terrifying. Tasmin remembers her first attempt at kangaroo mother care — holding her baby skin-to-skin. “My heart was racing, and he could feel it,” she said. “He became distressed, and they had to stop. But the next day, we tried again. And every day after that, it got a little easier.”
Kangaroo care became more than just a medical intervention — it was the bridge between mother and child. “Even three hours of skin-to-skin makes a difference,” Tasmin said. “It helps your baby stabilize, helps your milk come in, and helps you believe that you can do this.”
Breastfeeding, she explained, is often an emotional battlefield for preemie moms. “At first, only drops would come. You pump and cry and pray,” she said. “But when I finally held my baby, my milk flowed. It was like my body just needed to know he was okay.”

The Hidden Costs of Prematurity
Beyond the emotional toll lies the financial and logistical burden of having a baby in the NICU. Tasmin and her husband spent weeks travelling from Ekurhuleni in the East of Johannesburg to a hospital on the other West side of Johannesburg, often by public transport, juggling work, parking fees, meals, and childcare for their older child.
“You can’t plan for a premature birth,” she said. “You think you’ll bring your baby home and life will go on, but instead you’re trying to survive between hospital visits, financial strain, and emotional exhaustion.”
She dreams of a world where parents of premature babies are granted extended maternity and paternity leave, and where workplaces understand the realities of NICU life. “Four months of maternity leave doesn’t make sense when your baby spends two months in hospital,” she emphasized. “Parents need time to recover and bond — not rush back to work under pressure.”
What Communities and Health Workers Can Do Differently
Tasmin urges communities to educate themselves about prematurity and to approach families with empathy rather than advice. “Premature babies are not just small — their organs are underdeveloped,” she said. “Something as simple as overfeeding or exposing them to visitors can be dangerous.”
She also challenges healthcare systems to keep involving parents as partners in care. “In the NICU, parents often feel like visitors instead of caregivers,” she said. “But we need to be at the centre of care — to be heard, to be part of the decisions.”

A Message of Hope for Parents in the NICU
Before we ended our conversation, I asked Tasmin what she would say to a parent watching this interview from the NICU — scared, tired, and uncertain.
Her voice softened. “It’s okay to grieve,” she said. “It’s okay to cry for the birth you didn’t have, for the fear you feel. But once you’ve let it out, remember this — your baby is fighting with everything inside them. You are not alone. There’s a whole community ready to hold your hand and remind you that hope lives here.”
Parents and families can join the Preemie Connect support group on WhatsApp +27645085445 to share experiences and find guidance. For those looking to support the organisation through donations, you can contact Preemie Connect directly via email on preemieconnectsa@gmail.com to find out how to help.
Follow Preemie Connect on the socials @preemie connect and help us raise awareness and support for preemie babies and their families this World Prematurity Day.”






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